Zachary

Zachary

Wednesday, April 1, 2015

4-1-15 Quick Update

I have done a poor job of keeping up with the blogs as I started school this semester.  Everything has pretty well been status quo, and the kids are staying healthy, which is great!

February 28 was Rare Disease Day.  I had the privilege of speaking to the entire 6th grade at my son's middle school as well as Sarah's 3rd grade class.  It was an awesome experience.  The kids were so inquisitive and responsive.  I heard from many parents that my presentation touched their children more than I ever expected.  My goal with this is to educate people, even children.  When some of these 3rd graders go on to be doctors, hopefully this talk will allow them to think of PID as a possible diagnosis for their patients when they are seeking answers for chronic illnesses.  Here are a few random pictures.

 



One of the fun things we did over spring break was to have Zach's birthday.  He invited some of his friends to go play laser tag and then to come back and spend the night.  I guess some of the girls from his class went to play laser tag at this place for a birthday and dressed up as princesses, so the boys decided to reenact that.  I was dying it was so funny.  Notice some of their facial expressions.  We didn't go all out...just tiaras and wands.


Once we got back to the house and had pizza, it was time for cake.  We also decided to reenact Zach's first birthday cake smash, which was also hysterical.  The boys all had such a ball, and even as I was driving them home the next morning they were talking about what an awesome party it was.  So So Fun!

Zach's buddy John helped ensure that he got enough on his face.



And the comparison


 
Next infusion will be Friday this week, and Saturday morning Zach is running the Easter Egg 5k. 

Here are a few random goalie videos from this spring so far:)

https://youtu.be/8URK_MGTIb0

https://youtu.be/e-dlEV62HhM

https://youtu.be/R_8L85n4Gs0

https://youtu.be/_zUV6goG6BU

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