8-7-14 Zach's first infusion

We found out on Wednesday that the nurse would be coming Thursday morning for Zach's first visit.  We gave him Benadryl and motrin, and we put a numbing cream on about 45 minutes before she got there.  She asked me to have everything laid out for the infusion but not to draw it up yet so she could make sure I knew what I was doing. 

He has the same exact setup as the girls, so there is no learning curve (since I have been doing this since November for Sarah).

We got him set up, and I put the needles in.  He was a little anxious about what it would be like, but he did great.  One of the sides bothered him a bit, so we will make sure we move it next time.  He had almost no local reaction, even immediately afterwards.   He was sore, and still is even today, but he was able to go play goalie at soccer on Thursday evening.  We have decided to keep him on the 5g dose weekly instead of going to 10 grams bi-weekly.  We may try the higher dose in the winter, but right now, he is going to have practice 3-4 nights per week and games on the weekend.  He will not really have time to recover if he is too sore after the higher dose.

This was immediately following the infusion

 

 

This was about an hour later

 

 

 

We are pleased that it went so well, and we are praying it will help him feel better quickly!

 

Also on Thursday, Zach got to go put his stuff in his locker.  I can't believe he is going to middle school this year!